There about 2500 people milling around the lobby. I was there with my husband and mother in law.
We were all waiting to watch my daughter's last performance. At least, I was. She was one of the children in the back, but, to me, the whole entire production was just a backdrop for Elisabeth. Since I'm her mother, I'm allowed to be biased.
Anyway, we had to have her there an hour early, so we had a lot of waiting to do. We sat my mother in law on the comfortable couch, and proudly showed her Elisabeth's name in the program. The lady sitting next to Grandma, asked us, "Is your child in the production? Mine is, too!"
We figured out that our children were actually brother and sister on stage! How fun!!
Of course, epilepsy is always on my mind. Especially since Elisabeth had a 3 stage seizure two days before. And, for some reason, I blurted out to a total stranger that Elisabeth had to be in this scene, because she has epilepsy. That she has a backup, because of epilepsy, and therefore had to miss one of her performances.
I started to explain to her what epilepsy was, and that her meds weren't working.
She stopped me. "Does she see an epileptologist??
"She sees a pediatric neurologist. Is that what that is?"
"No. She needs to see an epileptologist. That's a neurologist who specializes in epilepsy. There's many types of epilepsy. If she has a brain lesion, she could be cured. If it's something else, we can sort it out."
"I AM an epileptologist. My group is at TX children's. You can google us. It's called the Bluebird Clinic for Pediatric Neurology. My name is Anne Anderson. Here's my cell number and my email. When I get back from vacation, get in touch, and we'll see about getting you seen."
The bells started going off. Time to go in and see our beautiful children sparkle and shine.
As we were walking in to the auditorium, it started sinking in what I had just heard. There were specialists in epilepsy!!!! There are different types of epilepsy, and maybe my Elisabeth could be cured!!! Or at least understood and treated more specifically. Maybe we could control them better??!!!
That's when the tears started. As I watched my beautiful, brave girl smile and move on that gorgeous stage, I realized that she just got a miracle. That maybe she would have a normal life after all. That of all the people in that whole building, we sat next to the one person who could help us. And we actually talked and exchanged information.
I thought of her sweet, trusting prayers, and then of this verse, another one I learned when I was young, "Call unto me, and I will answer thee, and show thee great and mighty things, which thou knowest not"
God is SO good!
ReplyDeleteWow. Like LKS said -- God really is so good.
ReplyDeleteI had no idea there were epileptologists. I have been looking for a doctor to help me with some very specific problems with my epilepsy which my neurologist can't seem to figure out. This post was so helpful to me.